Breastfeeding and Medically Complex Infants Lecture Pack
Infants with complex medical issues can pose a unique challenge for the lactation care provider. Join our expert speakers for an in depth look at supporting human milk feeding in families where the infant requires extra care and expertise to establish and or maintain breastfeeding/chestfeeding. Learn more about breastfeeding through childhood cancer, breastfeeding and late preterm infants, neurological conditions, congenital heart disease and Down Syndrome, along with learning more about allergies, sensitivities and galactosemia. Our speakers include Lyndsay Hookway, Angela Lober, Ellen Lechtenberg, Heather Millar, Mariana Colmenares Castaño and Laurel Wilson.
*Only those registering for the main conference, or have registered for the main conference will have the ability to purchase this lecture pack. You will have the opportunity to purchase this add-on at the time of conference registration, or anytime afterwards (during the time of the conference).
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Speakers & Presentations
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PhD, RNC, IBCLCBiography Topic Info
Dr. Angela Lober has been an educator and clinician for over 19 years. She has been an Internationally Board Certified Lactation Consultant since 2005 providing evidence-based care within an academic medical center and within her community. She has taught all aspects of breastfeeding to families, healthcare professionals, and paraprofessionals. She completed her PhD at Arizona State University's College of Nursing and Healthcare Innovation focused on the breastfeeding complexities of late preterm infants.
Abstract:View Full Presentation InformationLate preterm infants struggle with feeding challenges. Due to the oscillating nature of breastfeeding progress in the late preterm population coupled with the innate issues of prematurity, families need support to navigate waters toward breastfeeding success. A model for evidence-based education and breastfeeding assessment will be presented to support infant development and empower mothers to achieve their breastfeeding goals.
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MPH, RD, IBCLCBiography Topic Info
Ellen is the lactation services manager at Intermountain Healthcare Primary Children’s Hospital. She has a Master’s Degree in Public Health Nutrition, is a Registered Dietitian and an International Board Certified Lactation Consultant. Ellen has the unique advantage of using her nutrition knowledge as a lactation consultant. She has a passion for providing human milk for patients with nutritional challenges such as chylothorax and colitis. Her work on fat free human milk is published and has received national review. One of her career goals is to increase knowledge of nurses and healthcare providers regarding human milk immunology and breastfeeding thus improving lactation duration. Ellen has worked with the special needs breastfeeding dyad for the past 20 years at Primary Children’s Hospital to promote breastfeeding and human milk feeding. She designed, set up and manages the Mothers Milk Center at Primary Children’s hospital which opened in 2015. Ellen has presented at local, state and national meetings. She also has experience working at a corporate level with lactation consultants developing breastfeeding policies and protocols as well as lactation education programs for nurses and health care professionals.
Abstract:View Full Presentation InformationNeurologic conditions often have a significant impact on the breastfeeding/chestfeeding dyad. The majority of these conditions are congenital, however some may be acquired during the first year of life. Breastfeeding/chestfeeding management of the hypotonic and hypertonic infant will be discussed. Hypotonic neurologic conditions that will be reviewed include floppy infant syndrome, infantile botulism, medullary lesions, Prader-Willi Syndrome and Trisomy 13, Trisomy 18 and Trisomy 21. The hypertonic neurologic conditions cerebral palsy and drug exposed infant will be discussed along with neural tube defects and Congenital Zika Syndrome. Case studies of special needs babies with these neurologic conditions will be presented.
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RN (Disability), Cert IV in Breastfeeding Education (Community)Biography Topic Info
Educator with the Australian Breastfeeding Association (ABA). She has a particular interest in breastfeeding and Down syndrome after her son was born with Down syndrome in 2014. Her journey of breastfeeding her son included a long inpatient hospitalization stay due to his treatment for cancer. She has worked in disability services for over 20 years including community learning disability nursing in the UK, supporting GPs to manage the heath needs of people with complex health conditions and intellectual disability, medical undergraduate education in intellectual disability and currently works in general practice as a Practice Disability Nurse. Heather facilitates Breastfeeding Education Classes to expectant parents, is a Trainer & Assessor in ABA’s training team and provides guidance and contributes to publications on breastfeeding a baby with Down syndrome.
Abstract:View Full Presentation InformationAs a health professional you may find yourself supporting a mother who is breastfeeding or requires support to breastfeed her baby with Down syndrome. Babies with Down syndrome can often have additional health needs, which may affect how successful they are with breastfeeding. Down syndrome or trisomy 21 is the most common genetic cause of intellectual disability for around 1 in 700 births worldwide. People with Down syndrome are not all the same but may have similar characteristic physical features, health and developmental challenges and some level of intellectual disability. Research has shown many benefits associated with breastfeeding a baby with Down syndrome. It contributes to establishing long term skill development, particularly with speech and feeding skills, as well as aiding brain growth. It also provides an opportunity for mother baby bonding during stressful periods after learning of their baby’s diagnosis. Regardless of these known benefits, some mothers may nevertheless be told their baby will not be able breastfeed. This presentation will explore some of the common challenges mothers may face when breastfeeding a baby with Down syndrome and tips on how to address these for the mother and baby. The material presented will also assist health professionals to support mothers with babies who may have similar health/developmental needs.
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IBCLC, RLC, BSc, CLE, CCCE, CLDBiography Topic Info
Laurel Wilson, IBCLC, CLE, CCCE, CLD is a TEDx and international speaker, author, pregnancy and lactation expert, and consultant. She served as the Executive Director of Lactation Programs for CAPPA, the Childbirth and Postpartum Professional Association for 16 years and now is on the Senior Advisor Board. She served on the Board of Directors for the United States Breastfeeding Committee from 2016-2019. She also is on the Advisory Board for InJoy Health. She owns MotherJourney, focusing on training perinatal professionals on integrative and holistic information regarding pregnancy, childbirth, and breastfeeding. She has her degree in Maternal Child Health: Lactation Consulting and is an internationally board certified lactation consultant. As the co-author of two books, The Attachment Pregnancy and The Greatest Pregnancy Ever, original Editor of the CAPPA Lactation Educator Manual, and contributing author to Round the Circle: Doulas Talk About Themselves, she loves to blend today’s recent scientific findings with the mind/body/spirit wisdom. Laurel has been joyfully married to her husband for nearly three decades and has two wonderful grown sons, whose difficult births led her on a path towards helping emerging families create positive experiences. She believes that the journey into parenthood is a life-changing rite of passage that should be deeply honored and celebrated.
Topic: Can a Baby Be Allergic to Breastmilk?: Sensitivities, Allergies, Galactosemia, and Lactose Intolerance - [View Abstract]
Abstract:View Full Presentation InformationLactation professionals often hear from their clients that their breastfed babies have been diagnosed as lactose intolerance. This lack of understanding regarding types of lactose intolerance and potential issues with breastfeeding involving the newborn gut often lead to a cessation of breastfeeding. This session will cover the three main types of lactose intolerance, as well as galactosemia. Maternal gut damage and protein sensitivity and how that can impact the breastfed baby will also be addressed. Attendees will also learn about the most common foods that cause food sensitivity and allergy and what referrals are best made with these issues.
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BSc, RNC, HV, IBCLCBiography Topic Info
Lyndsey is an experienced paediatric nurse, children’s public health nurse, International Board Certified Lactation Consultant, Holistic Sleep Coach, researcher and responsive parenting advocate. She has worked in hospitals, clinics, the community and within clients’ homes for 20 years, serving within the UK NHS, in private practice and voluntarily.
The co-founder and clinical director of the Holistic Sleep Coaching program, Lyndsey regularly teaches internationally, as well as providing mentorship for newer sleep coaches. She is passionate about responsive feeding, gentle parenting and promoting parental confidence and well-being.
With Professor Amy Brown, she is the co-founder of Thought Rebellion – an education and publishing company seeking to inspire, challenge and equip professionals and writers in the parenting, lactation and perinatal space with an evidence based revolution.
Lyndsey is currently a PhD researcher at Swansea University, exploring the needs and challenges of medically complex breastfed infants and children. In 2019 she set up the Breastfeeding the Brave project to raise awareness of the unique breastfeeding needs of chronically, critically, and terminally ill children in the paediatric setting. The mother of a childhood cancer survivor, she often talks about the impact of chronic serious illness on families, and seeks to support other families living through a serious childhood illness.
Lyndsey is a respected international speaker and teacher, and regularly speaks out against the dominant sleep training culture, as well as advocating for the rights of families to receive high-quality, compassionate and expert support. She is the author of Holistic Sleep Coaching (2018), Let’s talk about your new family’s sleep (2020), Still Awake (2021), Breastfeeding the Brave (2022) and co-author of The Writing Book (2022).Abstract:View Full Presentation InformationMost children, happily, encounter no significant illness during childhood. Of those who do, some will be breastfed. Exclusive breastfeeding for 6 months, as well as continued breastfeeding alongside appropriate introduction of solid foods until the age of two years and beyond is recommended by the World Health Organisation. Breastfeeding is known to confer multiple well-documented protective properties, and the risks of not being breastfed are profound, even in well-developed countries.
Although breastfeeding reduces the overall risk of many serious childhood illnesses and malignancies, it is not a panacea. Many children who are breastfed optimally will still develop a serious health condition. This small group of children, and their families are an important population, with specific needs that are under-represented in policy, literature and professional training.
This presentation will identify specific childhood cancers, their prevalence and common treatments. It will also introduce some of the challenges experienced by parents breastfeeding their child through cancer, and some practical ways to support families facing this ordeal. -
MD, IBCLCBiography Topic Info
Mariana Colmenares Castaño was born in Mexico City, and from an early age she was fascinated by animals and nature. She studied medicine at the National University of Mexico (UNAM), and found her passion as a pediatrician doing her residency at the National Pediatric Institute. With the birth of her first child, Mariana witnessed the lack of knowledge and commitment with breastfeeding and nutrition within the medical profession. This was her impetus to specialize in breastfeeding medicine. Certified as a Lactation Consultant (IBCLC) in 2011 by the International Board of Lactation Consultant Examiners (IBLCE), she is currently a member of the International Lactation Consultant Association, the Academy of Breastfeeding Medicine and a proud founding member of the National Lactation Consultant Association of Mexico (ACCLAM), where she served on the Board of Directors as Education Coordinator (2014-2019). Regional coordinator for the Academy of Breastfeeding Medicine for the Región of LATAM (2018 to date) and an in coming board member 2019-2022. As part of her continuing professional training she studied at the International Breastfeeding Clinic, in Toronto CA.
Mariana is a member of the team for Breastfeeding Country Index BFCI, a project from Yale University and Universidad Iberoamericana whose goal is to develop an evidence base metric that can help decision-makers to understand the current status to elevate breastfeeding programs and increase breastfeeding rates. A frequent speaker at national and international conferences (plenary speaker at ILCA 2018), she has published numerous articles and co-authored a chapter for the National Academy of Medicine. To contribute to a medical profession better prepared to support breastfeeding, she teaches medical students at the National University of México and serves as a consultant for the National Health Institute and UNICEF.Abstract:View Full Presentation InformationBreastfeeding can sometimes be challenging for some families even when baby and mother are healthy. The Inmunological and nutritional benefits provided by breast milk must be considered when feeding any baby, it is by far the best start for babies that have any other disease where they can tend to suffer from multiple respiratory infections and other medical complications putting babies health, wellbeing and lives at risk. When there is a baby with a congenital cardiac disease we can face a lack of evidence and homogenous practices regarding breastfeeding. Many mothers feel helpless and many surgeons and cardiologists are not convinced that breastfeeding is better and easier for the infant with congenital heart disease. They are uncomfortable with not knowing the volume baby consumes and are not use to observing oxygen saturation an heart rate when the baby Is feeding at the breast. Current challenges in treating patients with chronic conditions include the prioritization of breastfeeding, identification of the most effective nutritional interventions, and the prevention or recovery of acquired growth failure.
Children with congenital heart disease who breastfeed have better growth, shorter hospital stays, and higher oxygen saturations than children with congenital heart disease who receive formula. It is necessary to support this families with evidenced based information to promote and support of breastfeeding to all mothers and babies. Create programs to meet the needs of this vulnerable babies and train surgical and pediatric staff of the neonatal surgery unit so they can support and facilitate a multidisciplinary work.
Educational Credits
This Add-on Lecture Pack offers 6 hours of continuing education. This program is approved for 6 AAFP CME credits, 6 L-CERPs and 6 Nurse Contact Hours.
Breastfeeding and Medically Complex Infants Add-on Purchase Details
Registration: Closed. Interested in accessing the presentations? Please contact us
Presentations Available Online: Until August 23, 2022. (September 13 for GOLD Annual Members)
Important Note: Please note that this package was previously offered alongside the 2020 GOLD Lactation Online Conference. If you have previously purchased and viewed this series of lectures, you will not be able to claim another accreditation certificate again.
Individual Breastfeeding and Medically Complex Infants Add-on to Main Conference |
Group Breastfeeding and Medically Complex Infants Add-on to Main Conference (per person) |
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| ACountry Category | $110 | $100 | ||
| BCountry Category | $50 | $40 | ||
| C & DCountry Category | $25 | $20 | ||
| What is my Country Category?All Prices in $USD |
Conference registration is now closed. Please contact us for access to the presentations. | |||
Add-on Purchase Details
- Group Registration: Pricing above is per person. Group rates for the Breastfeeding and Medically Complex Infants Add-on Lecture Pack will be offered to members at the time of Main Conference Registration Only. As long as you have a group of 5+ members when you register for GOLD Neonatal Conference, your members will have the option to purchase the add-on. Not all group members are required to purchase the add-on to qualify for group discount pricing. Groups members may choose to purchase the add-on after their conference registration however they will be charged the individual rate at that time.
Registering for the add-on is easy! You will be prompted to select this add-on package when registering for GOLD Neonatal, selecting 'yes' if you wish to avail yourself of this special education. Log in details to access the lecture pack will be the same as when accessing GOLD Neonatal, during the same dates as the main conference.
Should you have any questions about this special package, please contact the Conference Manager through our contact form
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As an international conference, we are sensitive to the fact that not all countries are economically equal. As breastfeeding advocates we recognise that people in these countries generally have the most need for this information and limited resources, which is why in addition to our standard registration options, this year we are offering a special registration fee for residents from countries that fall in Cat. B, C & D. The Categories are based of the World Bank Data. Please view our Reduced Rate Terms. Proof of residency maybe required.
Category A:
Andorra, Anguilla, Australia, Austria, Bahamas, Bahrain, Barbados, Belgium, Bermuda, Brunei, Canada, Cayman Islands, Chile, Croatia, Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Greece, Germany, Hong Kong, Hungary, Iceland, Ireland, Israel, Italy, Japan, Kuwait, Liechtenstein, Lithuania, Luxembourg, Macao, Malta, Monaco, Netherlands, New Zealand, Norway, Oman, Poland, Portugal, Qatar, San Marino, Saudi Arabia, Singapore, Slovakia, Slovenia, South Korea, Spain, Sweden, Switzerland, Taiwan, Trinidad and Tobago, United Arab Emirates, United Kingdom, United States of America. TOP
Category B:
Albania, Algeria, American Samoa, Antigua and Barbuda, Argentina, Azerbaijan, Belarus, Belize, Bosnia and Herzegovina, Botswana, Brazil, Bulgaria, China, Colombia, Costa Rica, Cuba, Curaçao, Dominica, Dominican Republic, Ecuador, Ecuador, Fiji, Grenada, Guatemala, Iran, Jamaica, Jordan, Kazakhstan, Kiribati, Latvia, Lebanon, Libya, Macedonia, Malaysia, Maldives, Mauritius, Mexico, Montenegro, Palau, Peru, Puerto Rico, Romania, Russia, Serbia, Seychelles, South Africa, St. Kitts and Nevis, St. Lucia, St. Vincent & the Grenadines, Thailand, Turkey, Uruguay, Venezuela. TOP
Category C:
Angola, Armenia, Bhutan, Bolivia, Cape Verde, Côte d'Ivoire, Djibouti, East Timor, Egypt, El Salvador, Gabon, Georgia, Ghana, Guyana, Honduras, India, Indonesia, Iraq, Marshall Islands, Micronesia, Moldova, Mongolia, Morocco, Namibia, Nigeria, Pakistan, Panama, Paraguay, Philippines, Samoa, Sri Lanka, Suriname, Swaziland, Timor-Leste, Tunisia, Turkmenistan, Tuvalu, Ukraine, Uzbekistan, Vietnam. TOP
Category D:
Afghanistan, Bangladesh, Benin, Burkina Faso, Burundi, Cambodia, Cameroon, Central African Rep., Chad,Comoros, Democratic Republic of Congo, Equatorial Guinea, Eritrea, Ethiopia, Gambia, Guinea, Guinea-Bissau, Haiti,Kenya, Kyrgyz Republic, Lesotho, Liberia, Madagascar, Malawi, Mali, Mauritania, Mozambique, Myanmar, Nauru, Nepal, Nicaragua, Niger, North Korea, Papua New Guinea, Rwanda, Sao Tomé and Principe, Senegal, Sierra Leone, Solomon Islands, Somalia, South Sudan, Sudan, Syrian Arab Republic, Tajikistan, Tanzania, Togo, Tonga, Uganda, Vanuatu, Yemen, Zambia, Zimbabwe. TOP
Dr. Speakers Full Name
Speaker Credentials
Annet Mulder first became interested in breastfeeding in the year 2000, when she became a mother for the first time. During and because of her own breastfeeding experiences, in 2002 she became a volunteer with the Dutch breastfeeding Organization and in 2008 sat for and passed the exam administered by the International Board of Lactation Consultant Examiners. As an International Board Certified Lactation Consultant, she now
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Dr. Speakers Full Name
Speaker Credentials